Welcome to the World: Vibes Needed

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b5
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Re: Welcome to the World: Vibes Needed

Post by b5 » Sun May 18, 2014 12:38 pm

Sending love, strength, and healing vibes.

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For Sure
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Re: Welcome to the World: Vibes Needed

Post by For Sure » Mon May 19, 2014 7:33 pm

Thinking, praying and sending healing vibes to Avery and your Family. Much love your way

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Re: Welcome to the World: Vibes Needed

Post by BornXEyed » Thu May 22, 2014 10:31 pm

Golly day. Feels like forever and then some. Avery has been doing pretty well in rehab at Kennedy Krieger. Ever since her stroke it feels like starting all over but we are doing everything we can to give our girl the best opportunity possible to recover.

Tuesday, she has another catheter procedure. Ironically to accomplish the purpose of the original procedure on 4/2. This all feels surreal.

Here she is, first day outside since 4/2. This was taken on 5/14 or thereabouts.

Image

Wish I had the cognizance to interact more often. I've been so out of the loop. She is scheduled for discharge on 6/12. Hope that sticks.
Once in a while you get shown the light...

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Re: Welcome to the World: Vibes Needed

Post by Hedges » Fri May 23, 2014 4:43 am

Thanks so much for the update. She looks so adorable!! Marking Calendar now!!

And i think i say it for all ... don't worry about any lack of interaction ... you are spending your energy exactly where it belongs and is needed. ;-)

GO AVERY GO!!! \:D/
2020 ~ I got a rock ...

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Re: Welcome to the World: Vibes Needed

Post by brkdwnlisa » Fri May 23, 2014 2:52 pm

Go Avery!!! Keeping you all in my prayers.
Peace...it does not mean to be in a place where there is no noise, trouble or hard work, it means to be in the midst of those things and still be Calm in your Heart.

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~me
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Re: Welcome to the World: Vibes Needed

Post by ~me » Mon May 26, 2014 2:40 pm

BEAUTIFUL!

Thanks for the update! I agree with Hedges' post 100%...your attention is where it needs to be. We can wait for updates....we're always sending Avery and y'all our love!
~Remember to take care of one another~


~No matter how cold the winter, there's a springtime ahead.~

Rich
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Re: Welcome to the World: Vibes Needed

Post by Rich » Mon May 26, 2014 5:06 pm

Image

beautiful, beautiful, beautiful, beautiful girl! All good things to you and family!
Luck occurs when opportunity meets preparation.
AND LEAVE IT ON!

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pstoltz
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Re: Welcome to the World: Vibes Needed

Post by pstoltz » Mon May 26, 2014 8:09 pm

awesome picture thanks for sharing.



((((June 12th))))
"a friend told me I'd find you there"

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Re: Welcome to the World: Vibes Needed

Post by For Sure » Tue May 27, 2014 2:31 pm

oh my, how adorable she is. much love and strength to Avery and your family. She will continue to be in our daily thoughts, prayers and meditations. Healing and love your way!

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Re: Welcome to the World: Vibes Needed

Post by BornXEyed » Thu May 29, 2014 10:38 pm

Hi Y'all,

Ave's had another cath procedure this past Tuesday. It went smoothly. The investigation of her vein showed no new fibroblasts or abnormal cell growth, which means the cocktail of drugs she's on is working. That said, it's a risky mix of drugs; immunosuppressants coupled with pulmonary hypertension meds. She's basically reached the extent period of time that the docs have tested this cocktail on any other patient before her (it's a rare condition; Hopkins has only treated one other patient with her condition). Plan is status quo for now and she'll continue her physical and occupational therapy at Kennedy Krieger Institute (KKI). Discharge is scheduled for 6/12. Hope that sticks. Just having her back home would be amazing.

Gotta say this: being at KKI has humbled me considerably. There are children fighting amazing battles everyday. These kids are real warriors in this path of life.

Love y'all and positive vibes all around.

BxE
Once in a while you get shown the light...

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Re: Welcome to the World: Vibes Needed

Post by wheelman » Thu May 29, 2014 10:50 pm

((((Avery's Strength&Recovery)))))
Well, they're goin ruin the air we breathe, Lord have mercy
They're gonna ruin us all, by and by
I'm telling all you beware, I don't think they really care, I think they just sit up there,

AND JUST GET HIGH!!!

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~me
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Re: Welcome to the World: Vibes Needed

Post by ~me » Fri May 30, 2014 9:09 am

Glad to hear her latest procedure went well! Continued love and healing headed your way...with a little extra for all the other kids at KKI!!

<3 <3 <3 <3 <3
~Remember to take care of one another~


~No matter how cold the winter, there's a springtime ahead.~

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terrapin710
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Re: Welcome to the World: Vibes Needed

Post by terrapin710 » Sat May 31, 2014 7:12 am

::fist pump::
right on! glad to hear
they got the potion right
for Avery and there is no
progression of abnormalities...
phew! if i had the world to give~
May God Bless and keep you Always..
con'td healing vibes, prayers, and all
my love ...
what a great day after fathers day gift!
"Love what you do and do what you love...
...imagination should be the center of your life."

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Re: Welcome to the World: Vibes Needed

Post by Beyond Description » Tue Jun 03, 2014 5:28 pm

Go Avery! :)

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Dancind
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Re: Welcome to the World: Vibes Needed

Post by Dancind » Wed Jun 04, 2014 7:17 pm

((((Team Avery)))

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Re: Welcome to the World: Vibes Needed

Post by BornXEyed » Thu Jun 12, 2014 10:29 pm

Been a coupla weeks. I think about how a lot of the posts were so day-to-day and week-to-week early in Avery's life and how we then hit that wave of stability with her. And now we're here again.

Avery is scheduled for discharge from Kennedy Krieger on 6/26. She is really making strides walking again. She took her first solo steps yesterday. Just a couple but it's all about relearning how to walk and building confidence. This is just plain... I don't know... words have a funny way of being right to describe a situation and then escaping you.

We'll likely be visiting the good folks at Boston Children's Hospital this summer. They are the experts with her condition: pulmonary vein stenosis. Dont' bother googling--the info is terrible to read, but outdated. Long story short, I'm confident she'll regain her physical abilities, but she has a hell of fight ahead of her.

Keep vibin and prayin. She's a trooper.

Image
Once in a while you get shown the light...

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furthurfeline
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Re: Welcome to the World: Vibes Needed

Post by furthurfeline » Fri Jun 13, 2014 6:26 am

What a gorgeous smile. Thanks for including us in her journey of hope and healing.
(((((((Avery and family)))))))

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Re: Welcome to the World: Vibes Needed

Post by comesatime » Fri Jun 13, 2014 8:01 am

I truly admire her strength and of course, mom and dad's. Keep the positive energy flowing! She is a beautiful little girl!
Greet the morning air with song!

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Re: Welcome to the World: Vibes Needed

Post by wheelman » Fri Jun 13, 2014 8:41 am

{{{{{{{{{{{{{{AVERY}}}}}}}}}}}}}}}
Well, they're goin ruin the air we breathe, Lord have mercy
They're gonna ruin us all, by and by
I'm telling all you beware, I don't think they really care, I think they just sit up there,

AND JUST GET HIGH!!!

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~me
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Re: Welcome to the World: Vibes Needed

Post by ~me » Fri Jun 13, 2014 1:41 pm

Thanks for the update! Continued love, vibes, strength, and healing out to your wonderful family and beautiful (((((((Avery)))))))!!!!!!!
~Remember to take care of one another~


~No matter how cold the winter, there's a springtime ahead.~

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