Welcome to the World: Vibes Needed
Re: Welcome to the World: Vibes Needed
Sending love, strength, and healing vibes.
Re: Welcome to the World: Vibes Needed
Thinking, praying and sending healing vibes to Avery and your Family. Much love your way
- BornXEyed
- RatDog.Org Member
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Re: Welcome to the World: Vibes Needed
Golly day. Feels like forever and then some. Avery has been doing pretty well in rehab at Kennedy Krieger. Ever since her stroke it feels like starting all over but we are doing everything we can to give our girl the best opportunity possible to recover.
Tuesday, she has another catheter procedure. Ironically to accomplish the purpose of the original procedure on 4/2. This all feels surreal.
Here she is, first day outside since 4/2. This was taken on 5/14 or thereabouts.
Wish I had the cognizance to interact more often. I've been so out of the loop. She is scheduled for discharge on 6/12. Hope that sticks.
Tuesday, she has another catheter procedure. Ironically to accomplish the purpose of the original procedure on 4/2. This all feels surreal.
Here she is, first day outside since 4/2. This was taken on 5/14 or thereabouts.
Wish I had the cognizance to interact more often. I've been so out of the loop. She is scheduled for discharge on 6/12. Hope that sticks.
Once in a while you get shown the light...
- Hedges
- RatDog.Org Member
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- Location: Shores of Lake Erie
Re: Welcome to the World: Vibes Needed
Thanks so much for the update. She looks so adorable!! Marking Calendar now!!
And i think i say it for all ... don't worry about any lack of interaction ... you are spending your energy exactly where it belongs and is needed.
GO AVERY GO!!!
And i think i say it for all ... don't worry about any lack of interaction ... you are spending your energy exactly where it belongs and is needed.
GO AVERY GO!!!
2020 ~ I got a rock ...
- brkdwnlisa
- RatDog.Org Member
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- Location: You can never tell
Re: Welcome to the World: Vibes Needed
Go Avery!!! Keeping you all in my prayers.
Peace...it does not mean to be in a place where there is no noise, trouble or hard work, it means to be in the midst of those things and still be Calm in your Heart.
Re: Welcome to the World: Vibes Needed
BEAUTIFUL!
Thanks for the update! I agree with Hedges' post 100%...your attention is where it needs to be. We can wait for updates....we're always sending Avery and y'all our love!
Thanks for the update! I agree with Hedges' post 100%...your attention is where it needs to be. We can wait for updates....we're always sending Avery and y'all our love!
~Remember to take care of one another~
~No matter how cold the winter, there's a springtime ahead.~
~No matter how cold the winter, there's a springtime ahead.~
Re: Welcome to the World: Vibes Needed
beautiful, beautiful, beautiful, beautiful girl! All good things to you and family!
Luck occurs when opportunity meets preparation.
AND LEAVE IT ON!
AND LEAVE IT ON!
Re: Welcome to the World: Vibes Needed
awesome picture thanks for sharing.
((((June 12th))))
((((June 12th))))
"a friend told me I'd find you there"
Re: Welcome to the World: Vibes Needed
oh my, how adorable she is. much love and strength to Avery and your family. She will continue to be in our daily thoughts, prayers and meditations. Healing and love your way!
- BornXEyed
- RatDog.Org Member
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- Joined: Thu Sep 01, 2005 9:26 pm
- Location: Land of Pleasant Living
Re: Welcome to the World: Vibes Needed
Hi Y'all,
Ave's had another cath procedure this past Tuesday. It went smoothly. The investigation of her vein showed no new fibroblasts or abnormal cell growth, which means the cocktail of drugs she's on is working. That said, it's a risky mix of drugs; immunosuppressants coupled with pulmonary hypertension meds. She's basically reached the extent period of time that the docs have tested this cocktail on any other patient before her (it's a rare condition; Hopkins has only treated one other patient with her condition). Plan is status quo for now and she'll continue her physical and occupational therapy at Kennedy Krieger Institute (KKI). Discharge is scheduled for 6/12. Hope that sticks. Just having her back home would be amazing.
Gotta say this: being at KKI has humbled me considerably. There are children fighting amazing battles everyday. These kids are real warriors in this path of life.
Love y'all and positive vibes all around.
BxE
Ave's had another cath procedure this past Tuesday. It went smoothly. The investigation of her vein showed no new fibroblasts or abnormal cell growth, which means the cocktail of drugs she's on is working. That said, it's a risky mix of drugs; immunosuppressants coupled with pulmonary hypertension meds. She's basically reached the extent period of time that the docs have tested this cocktail on any other patient before her (it's a rare condition; Hopkins has only treated one other patient with her condition). Plan is status quo for now and she'll continue her physical and occupational therapy at Kennedy Krieger Institute (KKI). Discharge is scheduled for 6/12. Hope that sticks. Just having her back home would be amazing.
Gotta say this: being at KKI has humbled me considerably. There are children fighting amazing battles everyday. These kids are real warriors in this path of life.
Love y'all and positive vibes all around.
BxE
Once in a while you get shown the light...
- wheelman
- RatDog.Org Member
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- Joined: Tue Oct 17, 2006 10:49 am
- Location: Brick, NJ
- Contact:
Re: Welcome to the World: Vibes Needed
((((Avery's Strength&Recovery)))))
Well, they're goin ruin the air we breathe, Lord have mercy
They're gonna ruin us all, by and by
I'm telling all you beware, I don't think they really care, I think they just sit up there,
AND JUST GET HIGH!!!
They're gonna ruin us all, by and by
I'm telling all you beware, I don't think they really care, I think they just sit up there,
AND JUST GET HIGH!!!
Re: Welcome to the World: Vibes Needed
Glad to hear her latest procedure went well! Continued love and healing headed your way...with a little extra for all the other kids at KKI!!
<3 <3 <3 <3 <3
<3 <3 <3 <3 <3
~Remember to take care of one another~
~No matter how cold the winter, there's a springtime ahead.~
~No matter how cold the winter, there's a springtime ahead.~
- terrapin710
- RatDog.Org Member
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Re: Welcome to the World: Vibes Needed
::fist pump::
right on! glad to hear
they got the potion right
for Avery and there is no
progression of abnormalities...
phew! if i had the world to give~
May God Bless and keep you Always..
con'td healing vibes, prayers, and all
my love ...
what a great day after fathers day gift!
right on! glad to hear
they got the potion right
for Avery and there is no
progression of abnormalities...
phew! if i had the world to give~
May God Bless and keep you Always..
con'td healing vibes, prayers, and all
my love ...
what a great day after fathers day gift!
"Love what you do and do what you love...
...imagination should be the center of your life."
...imagination should be the center of your life."
- Beyond Description
- RatDog.Org Member
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- Location: The Mad River Valley
Re: Welcome to the World: Vibes Needed
Go Avery!
Re: Welcome to the World: Vibes Needed
((((Team Avery)))
- BornXEyed
- RatDog.Org Member
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- Joined: Thu Sep 01, 2005 9:26 pm
- Location: Land of Pleasant Living
Re: Welcome to the World: Vibes Needed
Been a coupla weeks. I think about how a lot of the posts were so day-to-day and week-to-week early in Avery's life and how we then hit that wave of stability with her. And now we're here again.
Avery is scheduled for discharge from Kennedy Krieger on 6/26. She is really making strides walking again. She took her first solo steps yesterday. Just a couple but it's all about relearning how to walk and building confidence. This is just plain... I don't know... words have a funny way of being right to describe a situation and then escaping you.
We'll likely be visiting the good folks at Boston Children's Hospital this summer. They are the experts with her condition: pulmonary vein stenosis. Dont' bother googling--the info is terrible to read, but outdated. Long story short, I'm confident she'll regain her physical abilities, but she has a hell of fight ahead of her.
Keep vibin and prayin. She's a trooper.
Avery is scheduled for discharge from Kennedy Krieger on 6/26. She is really making strides walking again. She took her first solo steps yesterday. Just a couple but it's all about relearning how to walk and building confidence. This is just plain... I don't know... words have a funny way of being right to describe a situation and then escaping you.
We'll likely be visiting the good folks at Boston Children's Hospital this summer. They are the experts with her condition: pulmonary vein stenosis. Dont' bother googling--the info is terrible to read, but outdated. Long story short, I'm confident she'll regain her physical abilities, but she has a hell of fight ahead of her.
Keep vibin and prayin. She's a trooper.
Once in a while you get shown the light...
- furthurfeline
- RatDog.Org Member
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- Location: Surrounded by beauty
Re: Welcome to the World: Vibes Needed
What a gorgeous smile. Thanks for including us in her journey of hope and healing.
(((((((Avery and family)))))))
(((((((Avery and family)))))))
- comesatime
- RatDog.Org Member
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- Location: NJ
Re: Welcome to the World: Vibes Needed
I truly admire her strength and of course, mom and dad's. Keep the positive energy flowing! She is a beautiful little girl!
Greet the morning air with song!
- wheelman
- RatDog.Org Member
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Re: Welcome to the World: Vibes Needed
{{{{{{{{{{{{{{AVERY}}}}}}}}}}}}}}}
Well, they're goin ruin the air we breathe, Lord have mercy
They're gonna ruin us all, by and by
I'm telling all you beware, I don't think they really care, I think they just sit up there,
AND JUST GET HIGH!!!
They're gonna ruin us all, by and by
I'm telling all you beware, I don't think they really care, I think they just sit up there,
AND JUST GET HIGH!!!
Re: Welcome to the World: Vibes Needed
Thanks for the update! Continued love, vibes, strength, and healing out to your wonderful family and beautiful (((((((Avery)))))))!!!!!!!
~Remember to take care of one another~
~No matter how cold the winter, there's a springtime ahead.~
~No matter how cold the winter, there's a springtime ahead.~